@article{article, title  = {{The construction of rare disease discourse on YouTube: highlighting a disparity between policy rhetoric and patient practices around public engagement}},

 publisher = {{F1000 Â鶹ÊÓƵ Ltd}},

 url = {{}},

 year = {{2022}},

 month = {{4}},

 author = {{Hanchard M}},

 doi = {{10.12688/wellcomeopenres.17324.2}},

 volume = {{6}},

 journal = {{Wellcome Open Â鶹ÊÓƵ}},

 pages = {{361-361}},

 note = {{Accessed on 2025/04/30}}}